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This One Is for The Gang
Posted by Stephen Green · 23 October 2003
What follows is 3,000 words of morbid, personal dreck. It's a story I've needed to tell for four years now, but I'm publishing it here, only so that. . . Well, I'm not sure why, other than I want it to be public. Yet I don't necessarily want anyone other than my friends to read it. I guess what I want is something like the pride one must feel after having some small thing catalogued in the Library of Congress. You don't need anyone to read it, but you sure feel better knowing it's there. You may, if you choose, read it. But don't. This one is just for Deb and Kat and Jay and Laura and Nancy and Mel and Ed and Adam and Bekka and Don and Other Dave and the Twins and everyone else who was there those six godawful months.
Had I known at the beginning of our friendship he'd be dead in three years, I still would have jumped in with both feet. David Frederick was just that fun. And "fun" doesn’t even begin to cover all that he was. He was my best friend, my big brother, my older self. Dave was what I wanted to be – and knew I could be if I watched him long enough and tried hard enough. And Deb… Deb is not the woman I wanted to love, though love her as a friend I always will. But when she watched Dave cook, when she touched his face after a corny line, when they danced… she adored him. He adored her. That’s why he cooked and danced and said all those corny things. Well, Deb’s not my woman, but I want what she gave to Dave. I want to be seen as she saw him. Deb & Dave convinced my jaded self that soulmates are real. I just wouldn’t wish her mourning on any woman I know. Not over me. Not over anyone. He got sick four years ago, nearly five. The same flu most everyone gets at some point during the cold months. Lots of coughing, loss of color, low energy, and when he drank his vodka – and Dave always drank his vodka – he'd lose his voice. The coughing went away after a couple-three weeks, but he didn't get better. You know, better. Seeing such an alive guy staying home because it was "easier" was just wrong. So he finally relented to Deb's badgering and went to the doctor. Diagnosis: Anemia, with an opportunistic fungal infection on his vocal chords. Nothing fun, but nothing dire, either. Just some weird, unpleasant medicine to get rid of the fungus, and a we'll-see-you-again-later on the anemia. A month later, he still wasn't better. Oh, the fungus was gone and he could still speak after four Citron martinis – as well as he could ever speak after four Citron martinis, that is. Back to the doctor. More tests. Cancer. The dreaded c-word. When he told me, I kept my poker face, but my insides went away. Deb sat there and held his hand. The prognosis was good. Some mild form of leukemia, he said. He'd do chemotherapy as an out-patient. I'd never heard of such a thing. What he'd get is a tube in his side, and a Walkman-sized drug dispenser. We joked about how much Absolut Citron he could mainline through it, and I asked if I could get one, too. Glasses were raised, eyes were wiped, and all was well. I mean, they don't let you stay at home if you're dying. Right? He went in for the last batch of tests before they installed his Drug Walkman, and decided it would be best to skip it, and keep him there at Penrose Hospital for a real series of chemo treatments. Deb, who was older than Dave but always looked younger, for once looked her age. Me? I was as impervious as Dave's bone marrow wasn't. Damnit, I knew he'd beat this thing. My god, he was 41 years old, otherwise in perfect health, and full of spirit. The only time I got upset, was a week or two before he went in the hospital. I stopped by Deb & Dave's place to hang out, drink, tell the old tales, and lend a shoulder if needed. Discovered the two of them had wasted the day and night playing on the Nintendo. The next night, out at Old Chicago, I took Dave aside and read him the riot act. "Look, I know you're going to get over this. But there's a chance you won't. And if I see you waste another day on the bed like you did yesterday, cancer is gonna be the least of your worries. Fuckin' live, man. You're too good at it." We hugged it out and that was that – there weren't many more wasted days before he checked into Penrose. He checked in just days after his 42nd birthday. If you knew Dave, you'd smile at the memory that his birthday fell on April Fool's. The party was a good one – as befit the man better than the situation. Long after most everyone else had left or passed out, we hung out on the sofa, nursing our nth Citron martinis. And he told me he was scared. Really goddamned frightened. But who wouldn't be? That's what I told him. I also told him what I knew, just knew: that he was gonna beat this thing. Deb looked more like Dave than she did like me – uncertain at best. But I didn't know what to tell her, other than what I was already telling Dave. "It's all gonna be alright." I just knew it. Dave was less certain. He told Deb, "If the time comes it's time to stop fighting, you have to tell me." Two weeks later, he looked like he was already dead – but that didn't stop him. Not Dave. I won't tell you what chemo does to a person. Either you've seen it and don't need to be reminded, or you're innocent and wouldn't believe me if I had pictures. But I still knew Dave was gonna win. Several times a day, he dragged his IV tree down the hall to the service elevator, down six (nine? Ten? Memory gets foggy on certain small details) floors, and out to the sidewalk where he could smoke his Marlboro Lights. After four weeks, he'd badgered his doctor into letting him have one, just one, smuggled Budweiser each evening. Deb, who worked for the local school district, had taken a sabbatical and practically lived at the hospital. Me? Secure in the knowledge that Dave would be OK, I hardly visited at all. I remember being there when the news stories started coming in from Columbine, pissed that Dave & Deb were paying attention to the TV instead of to me, who had finally bothered to pay another visit. Hell, everybody took better care of Dave than I did. Jay, his nephew, set up and installed Dave's computer in his hospital room, so he could keep in touch with his many online friends. Kat, Jay's bride, took care of Jay and Deb. Dave's sisters, Nancy and Laura (who practically moved here from California during), were there doing everything else. Melenie, everyone's Jewish mother, came down from Denver at least once a week, with chicken soup in her soul. No one took care of me – because I didn't need it: Everything was gonna be alright. And, damnit, I was right in what I knew – after a few more weeks, the cancer was gone and they sent him home to recoup. Dave came home, but I wasn't. Mom had developed some health problems, so I spent all of June back in St. Louis, taking care of her full-time. When I got back, all was back to the new normal: Dave still wasn't able to work, but he'd at least grown some fuzz on the top of his head. We goofed off and drank wine and spent a lot of time talking about not much. I told him that chemo hadn't done a thing for his receding hairline, but that I was sure Deb could at least paint some eyebrows on him. Deb, being on summer vacation, stayed home and played nurse. She was 50. She looked 60. A few months before, she could easily pass for 40. Dave looked like a guy who'd dodged a bullet, but had landed in hot ash. But all was well, just as I knew it would be. Then it came back. I know now a lot more about leukemia than I knew then: If it comes back, you're probably going to die. And if the diagnosis is Refractory AML, then you're going to die, period, full stop. But Dave hadn't given up. He told me, point blank, his odds were one in four. "You've beaten the odds your whole damn life. You'll beat them this time, too." Besides, they were going to do a stem-cell transplant on his marrow. Stem cells, people! That's all like cloning and shit. That's Star Trek stuff, and it works. Right? I just knew it would. Middle of August, they sent Dave up to St. Luke's in Denver. Fabulous facility, and on the leading edge of stem cell transplant technology. Nancy had already checked out as a donor, so all the pieces were in place. All they had to do first was kill off every single last bit of bone marrow in Dave's body. They do it with radiation. They pack you in rice and shoot gamma rays or X-rays or something until you're nearly as dead as yesterday's lunch. Why rice? It has the same density as flesh, so you get radiated evenly, all the way around. I drove up to visit, just once. "Hey, you've got a better tan than me. I'd like to get that dark, only without all the cancer and baldness." We were still joking, because we knew everything was gonna be alright. I did, anyway. The transplant procedure is simple, but I'll simplify it even more – because that's as best as I ever understood it. Once all the marrow in your bones is radiated away, they bring your donor in. Nancy gave a big old blood sample, and they stuck it in a centrifuge to get all the good bits out. Then they stuck two tubes in Dave, one in each arm. In with the good bits, out with the bad. The stem cells from Nancy's blood should find nice homes in Dave's empty bones, and start producing healthy marrow. And goddamn if they didn't do just that. The transplant took, as they say. Before long, Dave's body was producing healthy marrow which, in turn, was producing healthy blood. His body was no longer killing him. Everything was alright. I went back to being carefree and irresponsible even faster than Nancy's marrow went to work in Dave's body. Trivia time: If someone had tested Dave's blood for gender, he'd have shown as "female." More jokes ensued at Dave's expense. Tuesday, September 21, 1999, the cancer returned. Remember from high school geometry the "asymptotic curve"? A formula for one is X=1/Y, if memory serves. What an asymptotic curve does is rapidly and endlessly approach zero without ever getting there. It's like being on standby for a flight home on the day before Thanksgiving. Well, if you chart how radiation kills off bone marrow cells, it'd look like that. The first 95% are really easy to kill. Hell, the first couple doses probably do the trick. The next four percent take a couple of weeks of radiation therapy. The last 1%, maybe less, you just can't kill without killing the patient. Refractory AML is so pernicious, that even a surviving fraction of one percent is enough to bring the cancer back. Dave was the one who told me. His voice was weak, but clear. Just the facts, ma'am. "Everything is gonna be alright" turned out to be a myth. What "I just knew," was just shit. "So now what?" I asked, talking to Deb this time. "There's an experimental drug out of Boston, and the doctor thinks Dave is a perfect candidate." I hung my hopes on "perfect candidate" for a couple days. Thursday, September 23, 1999. I'm online, chatting up some girl in whose pants I've taken a current interest. Deb IMs me: Deb: I've been trying to call you. I didn't get it, and to this day I can't believe Deb managed to type what she did: Deb: They're sending him home to die. I told Deb I'd get offline and call her at the hospital. "What do you need? When are you two coming home?" I sounded like, or at least tried to sound like, someone planning for nothing more serious unexpected company. Deb told me what they were missing at the house, so I ran to the store and got what they needed. I called Mom. "They're sending Dave home." She didn't get it, just as I hadn't: "For what?" "Mom, they're sending him home to die." And for the first time, I cried. As if telling someone else made it somehow more real. Friday, around lunchtime, they came home. I'd already gotten everything put away, and had just sat there. I don't know what I was thinking, if anything. When they came in, I made like it was my house and that the unexpected-but-very-very-welcome guests had arrived. I just wanted to make it easier; I'm just not sure for whom. Saturday night, everyone gathered at Deb's for a . . . a party? A send-off? A pre-wake? I don't know what it was, but everyone came to pay their respects to the soon-to-be-departed. Nancy's estranged husband proved the only boor: "So what's it feel like to be dying?" Goddamn him. I hated him for asking that. I hated myself even more for wanting to hear the answer. Goddamn me, too, because I perked up to listen. "It sucks." Dave, bless him, didn't elaborate. He also didn't berate the question or the questioner. Damn us all: none of us did, or at least not out loud. Deb just. . . I don't know what she did. I don't know how she'd done what she'd done for six months. Right then, though, I think she just existed, and that only barely. All of us were numb. The next few days were a blur. I was there, finally, day and night. So was Deb, of course, as were Jay and Kat and Mel and Nancy and Laura. The doctor said Dave had about six weeks, and we weren't going to miss any of it. Although I did forget, every night, to pack an overnight bag. I didn't do it on purpose, of course – but I don't think I'd have slept at all if it hadn't have been in my own bed. Still, I should have been there. Dave decided to make good on his few remaining weeks. We discussed plans for a final daytrip through his beloved mountains. He wanted to see the eastern prairies one last time, too. All of us encouraged him, but none of us expected him to be able to do any of it. Wednesday, just six days after Dave had gotten his six-week notice, I awoke to the sound of the phone. It was half past noon, and I heard Jay's voice: "Dave died at 12:06." "Son of a bitch," I said. "I'll be right there." Later, I heard what had happened while I slept. The night before, Jay and I had changed the sheets and Dave & Deb's bed, complete with a moisture-absorbing pad. Part of what sucks about dying is that your bladder control becomes sporadic. We tucked them in around midnight, and then I'd gone home. Sometime late the next morning, Deb woke up, but Dave was still in the sleep-but-not-sleep of the dying. She held him. She kept her promise. She said, "It's time to stop fighting." He said, "OK," and drifted in and out for a little while, there in her arms, until he did die. OK, everything is gonna be alright. And eventually, it was. Except for Deb – she never recovered from having the one she adored (and who adored her), die in her arms. Over the next couple of years, she forced us each, one by one, out of her life. I was out first, having been the most obvious, most blatant, reminder of Dave. But I couldn't resent her for it, and I couldn't hate her the few times I tried. Can you blame her? I can't. The other survivors have become the closest friends a man could ever hope to have – a surrogate family in every respect. So close, that they have accepted my bride as one of their own. Melissa never knew Dave, never saw what we saw, and didn't share what we shared. But the Dinner Party Gang, as we've come to be known, took her in as I did – as a family should. And also because she looks at me sometimes the way Deb looked at Dave. My brother, it seems, taught me well. That's why I'll never regret having jumped in with both feet. There are countless details from the story that I missed. Dave's Golden Retriever, Stella, mourning like the human people. My attempt to bribe Dave into surviving, by telling him that each bottle of his best wine we drank now, I'd replace for him in 12 months. Dave reconciling with his 19-year-old daughter. The way Laura became our new Dave, even if she won't drink vodka martinis. The night Mel, the woman we all cried on, let herself cry on my shoulder. And how important that made me feel. How her husband, Ed, went from becoming "Mel's husband," to a man close to my heart – and their kids, just as close. The night Jay punched out a fence in despair. Fill in details from your own losses, because I'm sure they're not much different from the other details I haven't mentioned. My best friend, my brother, my older self, received his death sentence at 41, and was dead six months later. My father died at 41, 20 years ago come February. Today, my best man is 41 and suffering from a severe kidney condition. I'm 34, in perfect health, yet sometimes morbidly wonder if seven years is all I have left. But everything is gonna be alright. I just know it. Comments
Thanks for sharing. It's one of those you read that make your own problems so trivial. I'm goning to be huggin my sons extra tightly this morning. Posted by: John Rogers at October 23, 2003 04:12 AMI'm 34, in perfect health, yet sometimes morbidly wonder if seven years is all I have left. then live those seven years, and the rest that follow, well. don't waste what you learned, and what it cost you. my stepfather was diagnosed and died in a little over a month. that was a year and a half ago. some days it feels like 5 minutes ago, some days like centuries have passed. time washes all things clean if you let it. Posted by: Teri at October 23, 2003 04:59 AMI'm not reading anything. I'm sorry about whatever trouble you had, VP. I find your blog indispensable. I'm delighted that you were able to drink me under the table. Posted by: Jim at October 23, 2003 07:31 AMthis should have a tear-jerker warning on it. at least for crazy hormonal pregnant woman. i love crying at work. Posted by: amy at October 23, 2003 08:09 AMThanks for pouring that out. It is probably a help to you to vent like that, but the real benefit is in the people who read it. Thanks. Posted by: King of Fools at October 23, 2003 08:14 AMThat was amazing. Thank you so much for sharing. Posted by: Lawren at October 23, 2003 08:26 AMI know what you went through. I lived exactly the same thing with my friend Alex: his weird anemia, the subsequent discovery, the "hey, 90% survive this type of cancer" phase, the rad treatments ("just call me Radioactive Man"), the wasting away of a great artist. He was 27 years old when he died in his parents' arms, in the summer of '99. As Spider Robinson wrote, "shared joy is increased, shared pain is lessened." Thanks for the post. Everything IS going to be alright. Posted by: Chaos Overlord at October 23, 2003 09:41 AMSteve. One of the reasons I read you is because you are more in touch with your own humanity (and subsequently others' as well) than just about anyone I know. You shoot as straight as they come, don't make excuses, are willing to be wrong (and love being right!), have a wonderful sense of humor, and display a vulnerability that is to-die-for. This is a tragically wonderful story. It doesn't get any worse than this, but we can't possibly experience our lives completely without allowing ourselves to experience the pain that it can bring. And you demonstrate that so nobly here. Thank you for sharing this with us. Thank you for sharing your humanity with us. Posted by: Greg Hill at October 23, 2003 10:31 AMDammit Stephen, I'm crying again. Are you sure I should let Jay and Laura read this? Posted by: kat at October 23, 2003 10:35 AMJeez. Thanks for sharing that, Stephen. It took me back to a similar event in my own life some years ago in which a dear friend died. Sometimes, I suppose, you just have to stop and remember. Posted by: Mr. Lion at October 23, 2003 02:00 PMBless your heart for sharing, Stephen. Posted by: Emily at October 23, 2003 02:02 PMThanks, Stephen; that had to hurt putting it down, but it's a lovely memorial to your friend !! I've found that putting things like this out there in cyberspace, if only to be seen by a select few, can help tremendously. It seems to lift the personal burden a bit. Maybe everyone knows that already, tho. Posted by: david at October 23, 2003 08:11 PMMy husband made sure I read this, reminding me three times. I'm sorry for your loss. I'm one of those "happy" cancer stories where the hair grows back and the scars (mostly) heal, and the disease just stays in one place until you take it out and "make sure" with radiation. My 12 year anniversary is November first, and for some time now I have planned to post my story - in small doses - next week. I'm 31, and I know what you mean about time left. Thanks again. hln Posted by: hln at October 23, 2003 08:33 PMThis year I had a friend who went into the hospital for an invasive, but not life-threatening, procedure involving her heart. She went into surgery at 0700. The procedure was supposed to take 2 hours. AT 1730. her husband called us and said that she was still in there. My wife and I went to the hospital. There had been complications, and the surgeons had to open her up to stop the bleeding that was killing her. They took her out of surgery at 1800 and at 1930 they took her back in to open her up again. She was in surgery until 2130 that night. My wife and I held her husband in our arms while he cried for her. She required a complete tranfusion, i.e., she had bled her entire blood supply out. Somehow, she survived. Several weeks later I asked her, now that God has given you back your life, what are you going to do with it? She is still trying to decide. We all have to die. How we live is what is important. Live each day as if you will die tomorrow. Live each day as if you will live forever. Live each day. Your friend lived. Posted by: david layne at October 23, 2003 08:52 PMThe women in my family have a history of Leukemia. In 1979, my great grandmother was diagnosed with and died of AML. In 1995, my mother was diagnosed with CML. In 2000, my grandmother was diagnosed with and died of non-Hodgkins Lymphona. I never really knew my great grandmother very well. My mother is still alive thanks to something like "the drug from Boston", namely Gleevec. Her story is in the foreword of "Magic Cancer Bullet" by the CEO of Novartis. I'm deeply sorry your friend couldn't get one of those. My grandmother was an incredible woman, and your tale touches me deeply in regards to her. She's one of the people who's strength has most impressed me. She built Liberty Ships and a house that matched her personality... simple, warm, and cross-bolted to its foundation. She (and her house) represented an unshakeable retreat in time of storms. I lost something when she died. Even in death, though, she passed something on to me. Reflecting on her life, I find that I will carry a bit of her with me for the rest of my life. Somehow, she found a way to remain solid. Posted by: Dishman at October 23, 2003 10:56 PMI find myself sitting here, with tears streaming down my face after having read this. During reading it...I can barely catch my breath, as it's hollowed out a space in the pit of my stomach; a very familiar space. I've traveled this avenue 2 too many times. We are old friends... I feel your pain & your sadness, as well as your anger & confusion. Thank you so much for sharing this. Your heart inspires me that perhaps one day, maybe even I can do this talking that I need so badly to do. Dreck? Your memorial to Dave came from the heart, and for that you don't need to apologize to anyone, anytime. Posted by: Bloodthirsty Warmonger at October 24, 2003 11:05 AMThank you for sharing! "Think where man's glory most begins and ends, And say my glory was I had such friends." Everything IS gonna be alright! Posted by: Jan Dehs at October 24, 2003 01:15 PMSteve, Thanks for sharing your story. While I was living in the Springs and hanging out with y’all while much of this was going on, I never knew many of the details about David’s last days. As you so eloquently express in your article, I too will never quite understand why a man who had such zest for life was summoned to the beyond earlier than any of us might comprehend. I miss him, I miss the gang. I hope you all are healthy and doing well. Scott I lost my absolute very best childhood friend, co-conspirator in life and all-around angel from God at the age of 22. He died of cancer as well, within 6 months of diagnosis. I still clearly recall his pain, the family's grief, my own pulling back when things got ugly, etc., and that was "only" in 1980. However, I do not mourn his death, as he left me with an incredible gift of Faith that made his passing something to celebrate. That, my friend, is the best thing a dying mate can do for the rest of us. I will always love him for that... Greg McKinney Posted by: Greg McKinney at October 30, 2004 12:11 AM |
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